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Two Sides Of The Data Collection Issue

Two interesting and related stories in today’s news.

Individually, these discrete pieces of data may appear useless. But data-broker companies can easily combine them to create “mosaics” about our health and health status.

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July 25, 2018
@crainshealth

Mount Sinai creates center to study health care applications for blockchain

The Icahn School of Medicine at Mount Sinai said Tuesday that it has created a Center for Biomedical Blockchain Research to evaluate potential health care uses of blockchain technology at Mount Sinai Health System.
The center will be part of Icahn’s Institute for Next Generation Healthcare, which has more than 50 staffers specializing in disciplines such as artificial intelligence, robotics, genomic sequencing, sensors and wearable devices.
The new center will be able to add a level of academic rigor to the discussion about blockchain in health care, said Noah Zimmerman, the Institute’s director of the health data and design innovation center in Redwood City, Calif., where half the Institue’s staff is located. The other half work in Manhattan.
“There’s not a technological solution that is going to save health care. We’re trying not to be part of the blockchain hype cycle,” Zimmerman said. “We want to balance that out. That’s what we’re adding as an academic medical center joining the fray.”
Blockchain is a digital ledger of transactions that is shared among a network of computers but not controlled by any one entity, such as a bank or the government. Users can inspect the transactions which are encrypted to prevent tampering. Blockchain is used to track transactions for digital currencies, such as bitcoin. But innovators are also looking for applications that address ways to share health data securely.
Stanford University runs a Center for Blockchain Research and last week Columbia University and IBM said they would create a Center for Blockchain and Data Transparency that will focus on data security and incubate new companies.
“The thing that differentiates this is that this is not just an academic center but an academic medical center,” Zimmerman said. “We’re the first people to drill into the biomedical and health care use cases for blockchain as a focus area.”
In addition to academic projects, the Mount Sinai center will allow the Institute’s researchers, many with engineering backgrounds, to create prototypes of their own. It will also partner with technology and health care companies experimenting with blockchain to help apply the technology outside of academia.
As one of its first projects, the Center has created a database of 144 companies that are working on blockchain projects for health and biomedical uses. The companies have raised a combined $670 million through initial coin offerings and venture capital funding, according to the database.
It includes two New York companies. CoverUs, based in Brooklyn, plans to allow users earn royalties from their health data in a blockchain-enabled health data exchange. Manhattan-based Embleema, which launched this month for patients and providers, connects patient-generated health data and electronic medical records in a secure repository.
Zimmerman cautions that blockchain is still in its infancy, comparing the current progress to the building blocks that shaped the Internet.
“The projects that are most interesting are building the plumbing of the ecosystem,” he said. —J.L.

 

 

 

 

 

 

Critics Continue To Lash Out At Justice Center

“This agency is a false promise to families who want quality care and justice for their loved ones,” says Assemblyman Thomas Abinanti.

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The articles linked to this page are provided as a public service by CP of NYS, and do not necessarily reflect the views of CP of NYS, its Board of Directors and staff, or of the CP of NYS Affiliates

Dancing With The REAL Stars

New York City Ballet (NYCB) Artists Ashley Laracey and Adrian Danchig-Waring conducted a dance workshop for children with disabilities on Saturday, July 21, at the Gideon Putnam Hotel in Saratoga Springs. Accompanied by NYCB Musician Nancy McDill, the two world-renowned dancers led 19 participants in ballet-based warm-up and movement combinations inspired by the NYCB’s Romeo + Juliet, and included a lively performance for family and friends.  Following the event, there was time for a photo and autograph opportunity with the artists.

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Federal Official Apologizes For Remark About Segregating People With Disabilities

A top official at the federal agency responsible for community living reportedly said publicly that she favored “segregation” of people with disabilities.

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The articles linked to this page are provided as a public service by CP of NYS, and do not necessarily reflect the views of CP of NYS, its Board of Directors and staff, or of the CP of NYS Affiliates

 

French Soccer Star Donates Winnings To Help Children With Disabilities

French soccer start Kylian Mbappe will donate his earnings from the World Cup to a charity that gives free sports instruction to hospitalized and disabled children. The organization also coordinates disability awareness campaigns for schools and businesses, according to the French news outlet L’Equipe.

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The articles linked to this page are provided as a public service by CP of NYS, and do not necessarily reflect the views of CP of NYS, its Board of Directors and staff, or of the CP of NYS Affiliates

Comedian Gets Nostalgic For R-word And Mocks Down Syndrome For Laughs

“There is a telling moment in the Netflix show when the N-word comes up. Segura, a self-styled badass, doesn’t say it. He starts to, but then his voice trails off.”

 

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The articles linked to this page are provided as a public service by CP of NYS, and do not necessarily reflect the views of CP of NYS, its Board of Directors and staff, or of the CP of NYS Affiliates

 

 

 

A National Crisis

The severe shortage of Direct Support Professionals is especially bad in New York State, but it has become a national crisis as state and federal governments continue to under-fund and under appreciate these highly trained and highly regulated professionals.

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The articles linked to this page are provided as a public service by CP of NYS, and do not necessarily reflect the views of CP of NYS, its Board of Directors and staff, or of the CP of NYS Affiliates

 

BITTINGER HONORED BY BROOKLYN DEVELOPMENTAL DISABILITIES COUNCIL

Amy Bittinger, Vice President of Family Support Services at ADAPT Community Network, was recently honored by the Brooklyn Developmental Disabilities Council for her advocacy work for people with Intellectual and Developmental Disabilities.

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The articles linked to this page are provided as a public service by CP of NYS, and do not necessarily reflect the views of CP of NYS, its Board of Directors and staff, or of the CP of NYS Affiliates