CP of NYS and its Affiliates advocate on behalf of people with disabilities, their families and the people who work every day to support them. We work to provide timely information about key issues at the state and federal level. This section will provide updates on these issues and links to other resources.
You can also find updated information about key issues at:
- Other resources can be found here www.cpofnys.org/find-services/other-resources/
Below is a brief overview on some of the current issues we are following.
Justice Center Report Released
Provider groups representing more than 250 not-for-profit agencies supporting New Yorkers with disabilities have issued a report calling for a review and refocusing of the New York State Justice Center for the Protection of People with Special Needs (“Justice Center”). The report, “The Justice Center: Opportunity Missed,” is based on responses to a survey from 119 organizations across the state that provide supports and services for people with disabilities. The public release of the report is embargoed until November 2, 2016 at 9:00 am.
View the news release HERE
View the full report HERE
View the Executive Summary HERE
Contact Policy Makers about Conflict Free Case Management Changes in NYS
New York State (NYS) does not currently comply with federal rules regarding “conflict free case management,” which means the same organization should not deliver both Medicaid Service Coordination (MSC) and Home and Community Based Services (HCBS) to the same person. By October 1 NYS has to submit a plan to the federal government that will bring the State into compliance. Individuals, families and staff are left with an unclear message about the timing, scope, and nature of these impending changes and – “it is very likely that individuals and families will have to change either their MSC provider agency or their HCBS waiver provider agency” in situations where they are currently the same provider agency. This federal requirement is in effect removing/limiting choice for individuals and families.
Policy makers must understand the strong bond between service coordinators, individuals and families and the degree to which these ties must be protected and preserved. It is critical that you let policy makers know that they must not allow anyone’s right to choose to be diminished. Individuals and families must be allowed to choose their MSC provider agency as well as their HCBS provider agency. Please go to the link below and use the sample there as a model for you to express your concerns about the proposed changes. http://www.nyfamilyrights.org/advocate/contact-influencers/
You can also send a letter via U.S. Mail. Click HERE, personalize and mail it.
#bFair2DirectCare is a voice for New Yorkers with developmental disabilities and a call to action to remind state leaders that direct care not-for-profit agency workers are agents of the state who need a fair rate of pay commensurate with their vital support responsibilities.
Not-for-profit developmental disability organizations receive 90 percent or more of their funding from government programs. These organizations have seen funding cuts and frozen budgets since 2008, and now face wage mandates and new labor rules without having the adequate funding to sustain them. In June of 2016 the #bFair2DirectCare coalition launched a Campaign to call on Albany to address this issue before the next state budget is adopted on April 1, 2017.
A series of news conferences, television and radio interviews and letter-writing campaigns garnered widespread bi-partisan support in the NYS Legislature. In late March, 2017 Governor Andrew Cuomo joined the legislature and committed to adding $55 Million to the 2017-18 NYS Budget to begin to pay direct care staff, and other low-wage workers at not-for-profit agencies more. The #bFair2DirectCare coalition is determined to convince our leaders in Albany that this is a good start, but not nearly enough. The coalition membership will continue its efforts to secure an additional $45 Million in each of the next five NYS Budgets to proved the funding necessary to pay these dedicated professionals a living wage. For more information or to find out how you can join this effort please visit the www.facebook.com/BFair2DirectCare/?fref=ts and www.nyfamilyrights.org.
Get Out and Vote!
All Americans have the right to vote, and there are federal and state laws to guard and guarantee that right. OPWDD also has information on how to exercise this basic right.
Learn more here http://opwdd.ny.gov/opwdd_community_connections/voting_rights or here http://nyfamilyrights.org/.